Rare Disease Day Resources

Canadian Organization for Rare Disorders

raredisorders.ca

Center for Rare Childhood Disorders

tgen.org/patients/center-for-rare-childhood-disorders

National Organization for Rare Disorders

rarediseases.org

Rare Diseases Clinical Research Network

rarediseasesnetwork.org

Rare Diseases International

rarediseasesinternational.org

Rare Disease Foundation

rarediseasefoundation.org