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Rare Disease Day Resources

Canadian Organization for Rare Disorders

raredisorders.ca

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Center for Rare Childhood Disorders

tgen.org/patients/center-for-rare-childhood-disorders

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National Organization for Rare Disorders

rarediseases.org

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Rare Diseases Clinical Research Network

rarediseasesnetwork.org

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Rare Diseases International

rarediseasesinternational.org

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Rare Disease Foundation

rarediseasefoundation.org

We acknowledge that we are working on the traditional territories of the Haudenosaunee, the Anishinaabe, the Wendat,

the Mississaugas of the Credit, and the Mississauga. We are grateful to have the privilege to live and work on this land.

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© 2025 The Disability Collective

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